Seeing
terminally-ill friends pass away is a regular occurrence for
Soweto's Red Cross home-based carers. Their choir helps them
to deal with their sorrow (p10105)
Thanks
to the help of her Red Cross visitor, Neria Maphefo got access
to medication that stopped her passing on the HIV virus to her
son, Prince, when he was born (p10106)

Nkele Saka and her two children receive a visit from Red Cross
volunteer, Seipata Raborifi. “When something is troubling
me, I talk to her," Nleke says. "Were I not able unburden
myself by talking to someone, I'm sure I would have been dead
long ago.” (p10107)
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Songs of Hope from Soweto
15 July 2003
by Marko Kokic in Soweto
“Some people who visit
for the first time say that there are a lot of scrap yards here,”
jokes Red Cross volunteer Vusi Mtembu referring to the makeshift shanties
that spread out as far as the eye can see.
Driving a little further he points to identical rows of low-cost yellow
brick housing, “Those we call matchboxes,” he laughs.
For Vusi and most of the 4.2 million people living in Soweto this
is what they call home. Apartheid may be over but poverty and its
accompanying problems still plague this historic township.
“Vusi almost lost his life here not long ago when he was hijacked
driving a Red Cross van,” points HIV/AIDS project coordinator,
Mantshadi Moralo from the back seat. “That’s why we are
doing more community outreach these days. Many people don’t
know about the Red Cross so we want them to know that it is for them,”
she says.
At Nacefield Hostel, residents have congregated to hear what the Red
Cross has to say. Volunteer Thabo Nkosi and others make a presentation
in local languages to the community’s leaders in the local clinic.
Nacefield is a place where rural migrants come to live. It has a troubled
history. There was a time not long ago when pitched battles were fought
in its streets between people of different tribes. These days the
community is peaceful but poverty remains.
In Nacefield, it is hard to distinguish where the village ends and
the city begins. Wood fires burn on the concrete ground. Women in
traditional dress sit outside their shacks sewing. Children with distended
bellies play barefoot in an abandoned car.
Only a few metres away are a large pile of decaying cow skulls. “Cow
heads are the only meat people can afford to buy here,” explains
Thabo. Before leaving the community, several boxes of condoms are
distributed freely to residents. Like poverty, HIV/AIDS has hit Soweto
hard.
“Everyone knows someone who has died of AIDS,” explains
Mantshadi Moralo, Soweto branch project coordinator for HIV/AIDS.
Based on statistics gathered at local clinics, Mantshadi estimates
that at least 20 per cent of the adult population is infected. This
is why all of Soweto’s 77 active Red Cross volunteers are involved
in home-based care for people living with HIV/AIDS.
In an informal settlement called Dlalini, volunteer Brenda Mahlangu,
cares for 25 year-old Neria Maphefo and her infant son, Prince. Neria
found out in June last year that she was HIV-positive. With Brenda’s
help she got access to medication that spared Prince from being infected
at birth.
But, apart from knowing that her child is healthy, Neria’s life
is far from happy. Prince’s father, Patrick, is also living
with HIV/AIDS. The once happy young couple no longer lives together.
For a while they went to the local Red Cross branch for counselling
but Patrick has given up.
“He says that after all he is going to die so what’s the
use of caring about life. He just hangs out with some friends and
smokes mandrax (a local narcotic),” says Neria.
Neria is unemployed and receives about US$ 20 a month from the government,
on which she must survive and care for her child. Brenda helps by
bringing her additional food, clothing and medicine.
Neria is one of 15 patients that Brenda cares for. Some are at a terminal
stage, requiring up to three visits a week. Yet Brenda remains easy-going
about the difficulty of her work. “I just tell my clients to
be cool, take their medicine and to feel free in their minds. They
are still the same person they were before they got infected and besides
no one really knows when it is their time to go, so why worry about
it,” she says.
For 35-year-old Nkele Saka home-based care has really made a difference.
She lives with her husband and two children. Although both she and
her husband are living with the virus, she has found the courage to
embrace life thanks to the help of volunteer Seipata Raborifi.
“I have to live like someone who is HIV-negative so that I may
bring up my children,” she says. “When something is troubling
me, I talk to Seipata and she gives me good advice. Were I not able
to rid myself of this burden by talking to someone, I am sure I would
have been dead long ago,” reflects Nleke.
Stigma against people living with HIV is still very real in the township
and those infected rarely disclose their status even to close relatives.
“You find that when some people find out a family member is
infected they build a shack outside and give them food as though they
are feeding dogs,” reveals Mantshadi.
Death from HIV/AIDS is all too common in Soweto. In a section called
White City, volunteer Singile Mtshali visits her patient Constance
Mosikoe. Singile soon returns to the car with tears in her eyes. “Constance’s
family told me that she passed away early this morning,” she
says choking a cry.
“I cared for her for about a year, she was my friend,”
she says, shaking her head as Mantshadi comforts her.
Later, volunteer Brenda discussed the difficulty in being a care facilitator:
“Working for the terminally ill is hard because many of those
we care for pass away. It is always painful to lose a friend but at
least we know that we bring them comfort during the time they had
left. That is what is really important,” she says.
But sometimes feelings do become overwhelming and some sort of emotional
outlet is necessary. “We formed a choir at the branch so that
we could sing some of our sorrows away,” says Mantshadi.
Their songs celebrate life and the memory of those who have passed
away. Using only their voices, they bring beauty to the “scrap
yard”. Their songs are many but the message is always inspiring.
It is one of hope.
Related links:
Listen to the choir!
Track 1
Track 2
Track 3
South Africa: appeals,
updates and reports
South African
Red Cross
Reducing the impact of HIV/AIDS
Anti-stigma campaign
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